Stories about the Reimagining Dementia Coalition
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Separate & Unequal: A Time to Reimagine Dementia
Outlines the work the Reimagining Dementia Coalition. Pia Kontos, Mary L. Radnofsky, Phyllis Fehr et al. (2021). Journal of Alzheimer’s Disease, Issue 80, pages 1395–1399.
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Dementia Man Video Blog with Special Guest Mary Fridley
Dementia Man talks with Mary Fridley about the annual "Taking it to the Streets" campaign. Dementia Man will perform twice during the campaign week. (c) 2024 All rights reserved The Actual Dance, LLC.
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Open The Doors Meeting
Mary talks at a #openthedoors meeting about Reimagining Dementia. ©openthedoors
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Wisdom Gone Wild - Creative Care
A conversation about creative care and the film Wisdom Gone Wild with director Rea Tajiri and moderator Brian Hu, artistic director of Pacific Arts Movement, Reimagining Dementia Coalition member/dementia activist Wally Cox and Coalition coordinator Mary Fridley. © POV 1995–2024 American Documentary, Inc.
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The 'D' Word Radio Show
The ‘D’ Word’s Pete Hill chats to Mary Fridley Co-ordinator of Reimagining Dementia: A Creative Coalition For Justice. [Click on the head phone icon to listen to the discussion]. By Pete Hill © UK Health Radio Network, 2024.
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PETER SARSGAARD ON BEING THE GUY YOU’D ‘LOVE TO HANG OUT WITH’
Peter Sarsgaard discusses preparing for his role in the new film ‘Memory’ with assistance from a Reimagining Dementia member.
By Adam Davidson. © Brooklyn Magazine. Image © Save the Children.
The Coalition was also mentioned in articles about the new film ‘Memory’ that appeared in Variety and OTTPlay. -
All Home Care Matters & Reimagining Dementia
Mary talks with Lance A. Slatton about Reimagining Dementia.
© All Home Care Matters, Enriched Life Home Care Services.
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Taking It to the Streets: Reimagining Dementia
Mary and Charles talk about “Taking It to the Streets”. A campaign that encouraged members to reimagine dementia with creativity—through the arts, play and more because, as the work of our members and so many others powerfully demonstrate, this is how we restore humanity to people impacted by dementia and ensure that diagnosis is a starting point for joy, connection, growth, and new possibilities. Guest submission by Mary Fridley, and Charles de Vilmorin.. Copyright © 2023 Haymarket Media, Inc.
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From Struggle To Resilience: Finding Joy in the Face of Dementia
A transformative discussion about the importance of joy and play in life and how breaking free from traditional caregiving methods can lead to empowerment and creativity. Mary shares her experiences creating the Joy of Dementia and Reimagining Dementia, emphasizing the importance of communication and meaningful relationships. By Jennifer Fink. Copyright © 2023 Fading Memories Podcast.
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Reimagining Dementia: A Physician’s Perspective on the Urgent Need for Change
To do right by those affected all over the world our collective approach to dementia urgently needs a paradigm shift. Dr. Lamb writes about three reasons why Reimagining Dementia is needed. By Brittany Lamb, MD. © 2023 Brittany Lamb.
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“Taking It to the Streets” with Reimagining Dementia
Mary Fridley chats with Lori La Bey about the Joy of Dementia, what the Reimagining Dementia Coalition does, how you can get involved in the “Taking It To The Streets” Campaign, how to add your name to the petition amd an improv technique to help you care and collaborate. © 2023 Alzheimer’s Speaks.
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A Candid Conversation with Mary and Linda
Mary Fridley, Coordinator, Reimagining Dementia: A Creative Coalition for Justice speaks with Host Linda Burhans “The Gal Who Cares For The Caregivers” (Candid Conversations) about the Taking It To the Streets campaign. © 2021 Linda Burhans
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US senior living providers part of international campaign to reimagine dementia
An international grassroots campaign that includes several US senior living providers is “Taking It to the Streets” to present a creative alternative to the fear, stigma and hopelessness often surrounding dementia. By Kimberly Bonvissuto. Copyright © 2023 Haymarket Media, Inc.
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Where are we to go? A 2023 message from Reimagining Dementia
Mary Fridley, Reimagining Dementia Coordinator, reflects on the work of the coalition so far and looks forward to the future.
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Abandoning the tragedy narrative
Patricia Spindel’s editorial on the need to abandon the tragedy narrative after meeting with Reimagining Dementia coordinator - Mary Fridley. © 2022 Social Action Ontario.
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Dementia Reimagined: A Conversation with Mary Fridley
Mary Fridley visits the Third Age Project, UK to share innovative approaches to supporting people with dementia and information about Reimagining Dementia.
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Dealing with dementia
Beyond Dementia launches Reimagining Dementia Malaysia with a new version of the Let’s Reimagine song and a video. S.Tamarai Chelvi. © 2022 Sun Media Corporation Sdn. Bhd.
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Deepness Dementia Radio - Interview with Myrna Norman
Howard Gordon interviews Reimagining Dementia Member Myrna Norman Deepness Dementia Radio © 2022.
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Let's Reimagine Dementia!
Showcases the new release of the song, "Let's Reimagine" with a goal to inspire and spread humanity and end the stigma around the world. © Life on Repeat Podcast, Laura Vaillancourt, 2022.
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Connecting Caregivers Radio Candid Conversations about Reimagining Dementia
Candid Conversations with Linda Burhans, Mary Fridley and Nancy Nelson © 2021 Connecting Caregivers Radio, Linda Burhans
Stories of Interest to Coalition Members
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Many Steps and Small Affairs: Inspiration After the Election
By refusing to pit the young and the old against each other, the Gray Panthers offer a more joyful, hopeful, and realistic way forward, by seeking common cause and encouraging mutual respect. By Lynn Casteel Harper © 2024 Gray Panthers NYC • All Rights Reserved
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Dementia is not a death. For some, it marks a new beginning
Advocates are reframing dementia as a different way of being – one in which potential for growth and connection endures. By Isabel Sutton. © Aeon Media Group Ltd. 2024.
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Ageism is making it impossible to fairly judge Joe Biden
By Lynn Casteel Harper
Copyright © 2024 America Press Inc. | All Rights Reserved.
Image: Gage Skidmore https://www.flickr.com/photos/gageskidmore
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My Mom Had Alzheimer’s. Now I Do Too, but I Learned From Her Not to Despair.
Stephen shares lessons from their mother’s experience. The diagnosis of Alzheimer’s disease doesn’t have to freeze our lives and herald the end of our stories; it can instead invite us to a new stage of life. By Stephen Gettinger. © 2024 The New York Times Company. (If you experience issues accessing please contact reimaginingdementia@gmail.com
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Time to Hold Alzheimer’s Association Accountable
Eilon Caspi informs the public and policy makers about Alzheimer’s Association (U.S.) activities in hopes that it will lead to meaningful changes.
© 2024 ChangingAging™ -
My final hug in a mug….
Wendy Mitchell writes one last final blog post. Wendy Mitchell © 2024
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Together We Are Stronger
Emily talks about the Voices of Asia project and book that aims to amplify the voice of lived/living experience, including informal care partners. The project provides a sense of hope and meaning to their lives, and the narrative collection can be a form of peer-to-peer support. By Emily Ong. Dementia Alliance International © 2021
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Keith Francis: You can’t live outside of the things you’re designing for
Keith speaks about the experience of incorporating the voices of persons living with disabilities or neurodiverse people, especially people with dementia, into the design process. © 2023 Venetian Letter.
The Coalition was also mentioned in articles about the new film “Memory” that appeared in Variety and OTTPlay
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Speak, Memory: Lynn Casteel Harper On New Ways Of Understanding Dementia
Derek speaks with Baptist minister, nursing-home chaplain, and writer Lynn Casteel Harper about her experience working with the elderly for years, particularly those affected by dementia. BY DEREK ASKEY. © 2023 The Sun.
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Wendy Mitchell sends a letter to Alastair Stewart
After Alastair Stewart revealed he has been diagnosed with dementia, author Wendy Mitchell, who has lived with the condition for nine years, sends a deeply moving letter to the broadcaster. By Wendy Mitchell © Associated Newspapers Ltd.
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Reimagining Dementia - Neighbours of Mississauga Road
Keith a researcher and member of Reimagining Dementia describes the coalition, it’s new Taking It to the Streets campaign, a campaign event and the on-going work he is doing in long-term care homes. By Annette Torchia. © 2023 Best Version Media.
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Awaiting a 10-year dementia plan for England
Dementia doesn’t wait for ‘due course’ – Nigel Hullah says people living with dementia deserve better. By Nigel Hullah. © 2023 Alzheimer's Society.
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More Than Madness Podcast
“More Than Madness” podcast with Sam Simon (Dementia Man), a playwright, author and actor. © RSS America LLC, ARTS. WORK. LIFE.
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Dancing with Dementia Fun Walk - Malaysia
Members of Beyond Dementia Malaysia participate in a Fun Walk, part of a movement to shift from a "dementia-phobic" culture to a culture of acceptance and compassion.
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From Japan to Malaysia: how the Totsu-Totsu Dance influenced me to reimagine dementia in Malaysia
Member, Cecilia Chan shares her experience with “totsu-totsu dance” as a means of connecting with people living with dementia.
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People living with dementia are NOT zombies.
Watch this response created by Reimagining Dementia Coalition Members to a viral video that used harmful, stigmatizing language and see the importance of reimagining dementia.
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Bruce Willis diagnosed with FTD: How churches can respond pastorally to people with dementia
Lynn Casteel Harper, Reimagining Dementia Coalition Member comments on Bruce Willis’ condition and how faith communities can respond pastorally to people with this and other forms of dementia. By Curtis Ramsey-Lucas. © 2023 BAPTIST NEWS GLOBAL. Photo © 2018 Gage Skidmore.
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Learning to Live with Dementia, it’s Not a Matter of ‘If’, But “When”
Stephen Lynn and his wife Susan discuss some of the stigma associated with dementia and the positive lessons they learned from living with it. Reverend Lynn Casteel Harper gives insight into how she has learned to navigate dementia. © 2023 Columbia Journalism School
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Crafting My Own Journey
Gail shares her approach to living well with dementia. Story and artwork by Gail Gregory. This article was originally published by Dementia Connections, an independent social purpose publisher on a mission to amplify the voices of people impacted by dementia and to share expert advice about living well with dementia. Find hundreds of evidence-based articles and subscribe to their newsletter at DementiaConnections.Org. © 2023 Dementia Connections Canada Ltd.
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The Possibilities of Creating with Dementia
Eileen Moncoeur and Helen Abel describe their work that aims to challenge the dementia tragedy narrative - social therapeutics, relating to people as creators and performers of their lives. © 2023 ChangingAging™
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Dementia: What Lens Do We Choose To Use?
Article by Cecilia Chan on why we need to examine the “dementia-as-unmitigated-tragedy” narrative that fuels dehumanisation, segregation, and institutionalisation of people living with the condition. © 2022 CodeBlue.
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John, The Reimagining Dementia Coalition for Social Justice and Me!
Kate shares a snapshot of her life with John after five years living with Alzheimer’s. Not the usual narrative of isolation, stigma and decline, but one of vibrance and creativity. They were enjoying life together and this is why she has joined the Reimagining Dementia Coalition.
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Does Dementia Have a Future? Challenging the Tragedy Narrative with John Killick and Mary Fridley
Dementia, for most of us, is associated with stigma, fear and dehumanization. What if, instead of approaching it as a dreaded medical disease that we had to fight, we collaborated with it and found ways to help those diagnosed—along with those around them—to continue to be creative and grow? © 2022 East Side Institute
